Ten Thousand Joys & Ten Thousand Sorrows A Couple's Journey Through Alzheimer's, by Olivia Ames Hoblitzelle
This page contains resources from various governmental and private organizations which we feel can be helpful for those seeking information. While we will do our best to keep this list current, we cannot be responsible for the content found on the links below.

Online Resources
Alzheimer's Disease
Caregiving
Hospice (Buddhist and General)
Grief
Additional Buddhist Resources
Spirituality, Alzheimer's, and Related Articles

Recommended Reading
Alzheimer's Disease
Caregiving: Alzheimer's and General
Death and Dying
Selected Titles on Aging

Audio Book AvailableAudio Book Available
Perkins School for the Blind in Watertown, MA has produced a copy of Ten Thousand Joys on tape especially for the blind and visually impaired  (under the original title The Majesty of Your Loving) and it is available through inter-library loan to anyone who meets their eligibility requirements.  Check with your local library! Catalogue number RCM1053

ONLINE RESOURCES

Alzheimer's Disease

Alzheimer’s Association
The leading advocacy, information, and referral foundation for Alzheimer’s disease.
VISIT NOW

ADEAR. Alzheimer’s Disease Education and Referral Center U.S. National Institute on Aging
A helpful clearing house for up-to-date information, resources, and research concerning Alzheimer’s Disease.
VISIT NOW

Alzheimer’s Disease Centers (ADCs) Directory National Institute of Health
A state by state directory for Alzheimer’s Disease Centers, which provide diagnosis and medical management as well as perform research and clinical trials.
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Alzheimer’s Disease International (ADI)
This is the international umbrella organization for all the Alzheimer’s associations around the world. It provides information, research, and international resources.
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Alzheimer’s Foundation of America
An umbrella organization that brings together various resources to better serve caregivers of and those suffering from Alzheimer’s.
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Habilitation Therapy: A New Starscape
An excellent article by Paul Raia, Ph.D, a leader in field of Habilitation Therapy.
VISIT TO ORDER NOW

Alzheimer’s Research Foundation
An organization that seeks to unite information on the disease as well as dispense funding, resources, and referrals.
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Mayo Clinic – Alzheimer’s
Comprehensive information on treatment and care for Alzheimer’s from one of the nation’s leading health institutions.
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National Institute on Aging – Alzheimer’s Disease Education & Referral Center
National Institute of Health resource center for Alzheimer’s disease.
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WebMD – Alzheimer’s Disease Health Center
General overview of the disease and treatment options.
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The Alzheimer’s Store
The Alzheimer’s Store is dedicated to providing unique products and information for those caring for someone with Alzheimer’s disease. Every product in the store has been carefully selected to make living with Alzheimer’s disease as easy as possible.
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Caregiving

Caring Connections
A branch of the National Hospice & Palliative Care Organization, it provides advocacy, information, and referral for caregivers and those in need of care.
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Eldercare Locator
A service of the US Administration on Aging that helps connect people to state and local agencies as well as community based groups who provide care for the aging.
Visit Now

Family Caregiving 101
Excellent place to learn more about a caregiver’s role in caring for elders.
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Family Caregiver Alliance – National Center on Caregiving
Information, education, services, research, and advocacy for caregivers.
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National Clearinghouse for Long-Term Care Information
Senior living alternatives and payment options.
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The National Family Caregivers Association
An advocacy organization for family caregivers, which has a very useful resource list for those seeking information and assistance. See also the websites listed under End-of-life Planning, Hospice, and Bereavement Information.
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Strength for Caring
Award-winning user-friendly website that not only provides a host of valuable resources for caregivers, but also allows visitors to connect and chat with other caregivers and share information and support.
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Share the Care™
ShareTheCaregiving™ is dedicated to educating the caregiving communities about the effectiveness of the Share The Care™ model, and making it more accessible throughout the country.
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Lotsa Helping Hands
Lotsa Helping Hands is a simple, immediate way for families facing the challenges of long-term caregiving or caring for an aging loved one to organize and communicate with other family members, friends, and neighbors.
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The Leeza Gibbons Memory Foundation
Nestled within your own community, Leeza's Place integrates educational programs, connective social activities, emotional support, and intergenerational programming designed to help you navigate through your community's continuum of care.
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Hospice Resources (Buddhist and General)

Buddhist Hospice Directory & Buddhist Bereavement
An international directory of hospices that specialize in Buddhist practice.
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Buddhist Spiritual Caregiving
Combining Buddhist wisdom and insight into the hospice experience.
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Hospice Directory
A valuable guide full of links and information on caring for those who are dying.
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The Metta Institute
An educational and advocacy organization committed to Buddhist approaches to death and dying.
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Zen Hospice Project
A San Francisco based hospice service that integrates Buddhist practice into the experience. The website offers information and resources concerning the subject.
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Grief

Buddhist Bereavement
A place to find resources concerning death and dying in the Buddhist tradition.
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GriefNet
Online community for those dealing with grief, death, and major loss.
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WidowNet
A place where widows and widowers can come together and share resources.
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Additional Buddhist Resources

BuddhaNet
A Buddhist educational resource that is designed for the beginner to the advanced practitioner.
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DharmaNet
A place for Buddhists from various different traditions to connect online.
VISIT NOW

Living Without Regret
Growing old in the light of Tibetan Buddhism
VISIT NOW


Spirituality, Alzheimer's, and Related Articles

The Mayo Clinic has many Alzheimer’s related articles. We’ve listed a few here. At the bottom of each article are links to more articles.

Alzheimer’s: Spirituality Can Be Comforting
Caregivers find capacity for spirituality lingers: Alzheimer’s, dementia patients respond to songs, prayers, religious symbols.
READ IT AT CNN.COM
READ IT AT FINDARTICLES.COM

Alzheimer’s: Balancing Needs of Caregiver and Loved One
READ IT AT MAYOCLINIC.COM

Alzheimer’s Caregiving: Maintain Your Support Network
READ IT AT MAYOCLINIC.COM

Alzheimer’s: Spirituality Can Be Comforting
READ IT AT MAYOCLINIC.COM

Are You Prepared for Death? Death is Unavoidable, But From the Buddhist Perspective, It’s Not Something to Be Feared
READ IT AT BELIEFNET.COM

God & Memory: Can Dementia and Spirituality Co-exist?
READ IT AT FINDARTICLES.COM

Living Until the End With Love
READ IT AT MAYOCLINIC.COM

Communicating Effectively with a Person Who Has Alzheimer’s
READ IT AT MAYOCLINIC.COM

Intimations of the Great Unlearning: Interreligious Spirituality and the Demise of Consciousness Which is Alzheimer's
READ IT AT FINDARTICLES.COM

Spirituality, Religious Practice May Slow Progression of Alzheimer's Disease
READ IT AT SCIENCEDAILY.COM



RECOMMENDED READING

Alzheimer's Disease

Learning to Speak Alzheimer’s: A Ground-breaking Approach for Everyone Dealing with the Disease
by Joanne Koenig Coste
New York: Houghton Mifflin, 2003.
PURCHASE ON AMAZON.COM

Tangled Minds: Understanding Alzheimer’s Disease and other Dementias
by Muriel R. Gillick
New York: Plume, 1999.
PURCHASE ON AMAZON.COM

The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer’s Disease, Related Dementing Illnesses, and Memory Loss in Later Life
by Nancy L. Mace & Peter V. Rabins
Baltimore: John Hopkins Press, 2001.
PURCHASE ON AMAZON.COM

The Forgetting—Alzheimer’s: A Portrait of an Epidemic
by David Shenk
New York: Anchor Books, 2001.
PURCHASE ON AMAZON.COM

Still Alice
By Lisa Genova
New York: Pocket, 2009.
PURCHASE ON AMAZON

The Little Word Catcher
by Danielle Simard (Author), Genevieve Cote (Illustrator)
Toronto: Second Story Press, 2008.
PURCHASE ON AMAZON


Caregiving: Alzheimer's and General

The Caring Spirit Approach to Eldercare by Nancy L. Kriseman
Baltimore: Health Professions Press, 2005
PURCHASE ON AMAZON.COM

Circles of Care: How to Set Up Quality Home Care for Our Elders by Ann Cason

Boston: Shambhala, 2001.
PURCHASE ON AMAZON.COM

Alzheimer’s: A Handbook for the Caretaker
by Eileen Higgins Driscoll
Boston: Branden Books, 1994.
PURCHASE ON AMAZON.COM

Family Care Guide (6th Edition)
Alzheimer’s Association, Massachusetts Chapter
Purchase on Alzmass.org

Alzheimer’s Caregiver’s Guide and Source Book
by Howard Gruetzner
New York: John Wiley & Sons, 1992.
PURCHASE ON AMAZON.COM

Caregiver’s Handbook: A Complete Guide to Home Health Care
Visiting Nurses Association of America

New York: DK Publishing, 1998.
PURCHASE ON AMAZON.COM

Chasing Dragonflies: Life and Care in Aging
by Lauren Smerglia Seifert
Cuyahoga Falls, OH: Clove Press, 2007.
Purchase on ClovePress.com


Death and Dying

Graceful Exits: How Great Beings Die
by Sushila Blackman
Boston: Shambhala, 2005.
PURCHASE ON AMAZON.COM

Advice on Dying: and Living a Better Life
by His Holiness the Dalai Lama
Translated and Edited by Jeffrey Hopkins
New York: Atria Books, 2002.
PURCHASE ON AMAZON.COM

The Way We Die: Brain Death, Vegetative States, Euthanasia and Other End-of-life Dilemma
by Leslie Ivan & Maureen Melrose
Grosseto, Italy, Pari Publishers, 2007.
PURCHASE ON AMAZON.COM

On Death and Dying
by Elizabeth Kubler-Ross
New York: The Macmillan Company, 1969.
PURCHASE ON AMAZON.COM

A Year to Live: How to Live This Year as if it Were Your Last
by Stephen Levine
New York: Bell Tower, l997.
PURCHASE ON AMAZON.COM

Coma: Key to Awakening
by Arnold Mindell
Boston: Shambhala, 1989.
PURCHASE ON AMAZON.COM

Still Here: Embracing Aging, Changing, and Dying
by Ram Dass
New York: Riverhead Books, 2000.
PURCHASE ON AMAZON.COM

Living in the Light of Death: On the Art of Being Truly Alive
by Larry Rosenberg
Boston: Shambhala, 2000.
PURCHASE ON AMAZON.COM

Lessons from the Dying
by Rodney Smith
Somerville, Mass: Wisdom Publications, 1998.
PURCHASE ON AMAZON.COM

The Tibetan Book of Living and Dying
by Rinpoche Sogyal
San Francisco: HarperOne, 2003.
PURCHASE ON AMAZON.COM

To Die Well: Your Right to Comfort, Calm, and Choice in the Last Days of Life
by Sidney Wanzer, M.D. & Joseph Glenmullen, M.D.
Cambridge, MA: Da Capo Press, 2007.
PURCHASE ON AMAZON.COM


Selected Titles on Aging

Tuesdays with Morrie: An Old Man, a Young Man, and Life's Greatest Lesson
by Mitch Albom
New York: Bantam, Doubleday, Dell, 1997.
PURCHASE ON AMAZON.COM

Winter Grace: Spirituality and Aging
by Kathleen Fischer
Nashville, TN: Upper Room Books, 1998.
PURCHASE ON AMAZON.COM

Let Evening Come: Reflections on Aging
by Mary C. Morrison
New York: Doubleday, l998.
PURCHASE ON AMAZON.COM

Aging: The Fulfillment of Life
by Henri Nouwen
New York: Bantam, Doubleday, Dell, l990.
PURCHASE ON AMAZON.COM

Old Age: Journey Into Simplicity
by Helen M. Luke
New York: Parabola Books, l996.
PURCHASE ON AMAZON.COM

Another Country: Navigating the Emotional Terrain of Our Elders
by Mary Pipher
New York: Riverhead Books, 1999.
PURCHASE ON AMAZON.COM

A Time to Live: Seven Tasks of Creative Aging
by Robert Raines
New York, Dutton, 1997.
PURCHASE ON AMAZON.COM

From Age-ing to Sage-ing: A Profound New Vision of Growing Older
by Zalman Schachter-Shalomi & Ronald S. Miller
New York: Warner Books, 1997.
PURCHASE ON AMAZON.COM
 


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